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Sunday, August 2, 2020 | History

5 edition of The governance of genetic information found in the catalog.

The governance of genetic information

The governance of genetic information

who decides?

  • 60 Want to read
  • 36 Currently reading

Published by Cambridge University Press in Cambridge, New York .
Written in English

    Subjects:
  • Genetic screening -- Moral and ethical aspects,
  • Genetic screening -- Government policy,
  • Privacy, Right of,
  • Medical records -- Access control,
  • Genetic Privacy -- ethics,
  • Decision Making -- ethics,
  • Genetic Privacy -- legislation & jurisprudence,
  • Public Policy

  • Edition Notes

    Includes bibliographical references.

    Statement[edited by] Heather Widdows, Caroline Mullen.
    SeriesCambridge law, medicine, and ethics, Cambridge law, medicine, and ethics
    ContributionsWiddows, Heather, 1972-, Mullen, Caroline.
    Classifications
    LC ClassificationsRB155.65 .G68 2009
    The Physical Object
    Paginationp. ;
    ID Numbers
    Open LibraryOL23223747M
    ISBN 109780521509916
    LC Control Number2009018067

    This paper draws from the literature on collective action and the governance of the commons to address the governance of genetic data on variants of specific genes. Specifically, the data arrangements under study relate to the BRCA genes (BRCA1 and BRCA2) which are linked to breast and ovarian cancer. Genomics governance. The preceding review of governance theory will provide the tools necessary for an analysis of existing and proposed mechanisms for the governance of genomics. These initiatives stem from the tremendous increase in the profile of genomics in the light of the completion of the sequencing of the human by: 2.

    The Regulation of Genetic Testing and the Protection of Genetic and Medical Information in Singapore: /ch In the decades since its independence in , the transformation of Singapore’s economy and its transition to a relatively developed economy has also in likeAuthor: Terry Kaan. Native American DNA is a book of far wider scope than its title, establishing the author as a leading authority on the topic. The politics of tribal DNA is but the starting point of a complex analysis that encompasses the whole framework in which DNA is appropriated in the study of human populations.

    Overall, scholars such as Bar-Yam et al., Carter et al., Winter, and Buhk indicate that synthetic biology biosafety governance is centered around the drive to assess and manage risks associated with concerns of (i) the unintentional exposure of novel genetic information to humans and the environment, (ii) the proliferation of such novel Cited by: The Impact of Genetic Testing and Genetic Information on Ethical, Legal and Social Issues in North America: The Framework: /ch This chapter discusses the impact of genetic testing and genetic information. It proposes a framework that facilitates a Author: Natalia Serenko.


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The governance of genetic information Download PDF EPUB FB2

Book Description. This volume maps the areas of ethical concern in the debate regarding the governance of genetic information, and suggests alternative ethical frameworks and models of regulation in order to inform its : Heather Widdows.

(Cambridge Law, Medicine and Ethics Book 9): Read Kindle Store Reviews - The Governance of Genetic Information: Who Decides. (Cambridge Law, Medicine and Ethics Book 9) - Kindle edition by Widdows, Heather, Mullen, cturer: Cambridge University Press.

Introduction Heather Widdows and Caroline Mullen; Section I. Problematising Governance of Genetic Information: 1. The medium and the message: tissue samples, genetic information and data protection legislation Neil C. Manson; : $ Genetic governance is at the heart of medical and scientific developments, and is connected to global exploitation, issues of commodification, commercialisation and ownership, the concepts of property and intellectual property and concerns about individual and communal identity.

The Governance of Genetic Information. Cambridge Law, Medicine and Ethics (Book 9) Share your thoughts Complete your review. Tell readers what you thought by rating and reviewing this book. Rate it * You Rated it *Brand: Cambridge University Press. No abstract available. Book Review: The Governance of Genetic Information: Who Decides.

Heather Widdows and Caroline Mullen, eds., Cambridge; Cambridge University Press, Author: Shanti Williamson. The book is divided into three parts. Part 1, ‘Problematising governance of genetic information’ is the most theoretical of the three, dissecting the key controversial issues and setting the tone for the rest of the : Ruth Wilkinson.

Finally, in conditions such as HD and breast cancer, the rights and interests of third parties offer a reason against the right not to know as genetic information is ‘shared’ or ‘family’ information Genetics shifts the focus from the individual to the group,24 25 and the focus of communal models of ethics is solidarity, not the protection of Author: Ruth Stirton.

This volume maps the areas of ethical concern in the debate regarding the governance of genetic information, and suggests alternative ethical frameworks and models of regulation in order to inform its restructuring.

About the Author. This volume maps the areas of ethical concern in the debate regarding the governance of genetic information, and suggests alternative ethical frameworks and models of regulation in order to inform its restructuring. Genetic governance is at the heart of medical and scientific developments, and is connected to global exploitation, issues of Format: Hardcover.

ISBN: OCLC Number: Description: xi, pages ; 24 cm. Contents: The medium and the message: tissue samples, genetic information, and data protection legislation / Neil C. Manson --Me, myself, I: against narcissism in the governance of genetic information / Søren Holm --Decisions, consent and expectations of the individual / Caroline Mullen.

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The Governance of Genetic Information. por. Cambridge Law, Medicine and Ethics (Book 9) ¡Gracias por compartir. Has enviado la siguiente calificación y reseña. Lo publicaremos en nuestro sitio después de haberla : Cambridge University Press.

Governance of Genetic Resources maps out a landscape of the international governance of genetic resources. It shows what governance efforts currently exist, what is missing, which areas are problematic, and outlines what the international community should be aiming for in regard to its future development and implementation.

Taking a broad view of the underlying technological, legal and economic factors, the book analyzes the formation of international regimes linking access to genetic resources to the fair and equitable sharing of the benefits arising out of their utilization.

construction and which will collect information specifically for the intended multi-disease and population health research. A human popu-lation genetic database is a collection of genetic, medical and, in some cases, genealogical data from a large number of people, arranged in a systematic way so as to be searchable.1 As a rule, such databases are.

The Potential—and the Threat—of Genetic Information. In the spring ofteams of researchers in Houston and New York City reported a discovery that may eventually lead to better diagnosis and treatment of several deadly types of tumors, including brain, breast, and prostate cancer.

Section 1: Introduction: Genetic, Governance, and Ethics Section 2: Ethics, Risk and Governance 1. Ethics of Clinical Genetics: The Spirit of the Profession and Trials of Suitability from to 2. Risk Management and Ethics in High-Tech Antenatal Care: The Finnish Experience 3.

ISBN: X: OCLC Number: Description: 1 online resource (xi, pages) Contents: The medium and the message: tissue samples, genetic information, and data protection legislation / Neil C.

Manson --Me, myself, I: against narcissism in the governance of genetic information / Søren Holm --Decisions, consent and expectations of the individual / Caroline Mullen.

Buy The Governance of Genetic Information by Heather Widdows, Caroline Mullen from Waterstones today. Click and Collect from your local Pages:. Andrew Niccol’s () GATTACA is a provocative film that can be “read” on at least two levels: that of “society” and social organization and that of the “individual” (self-regulation and social interaction).

GATTACA is a tale of authoritarian rule, the triumph of the Cited by: 2.Purchase Options MyNAP members save 10% online. Copy the HTML code below to embed this book in your own blog, website, or application.

Tip: press Ctrl-C or ⌘-C to copy. Copy the HTML code below to embed this book in your own blog, website, or application. An uncorrected copy, or prepublication, is an uncorrected proof of the book.The ‘Governance of Genetic Information Initiative’ grant program of the Open Society Foundations (OSF) seeks “to protect the basic rights of individuals and vulnerable populations affected by the proliferation of genetic monitoring technologies.” Interventions by the Governance of Genetic Information Initiative will focus on the development of a human rights–compliant standard for.